Thursday, 26 September 2024

Up close & personal Charlie Pappa CPAP


Hhhh πŸ’—πŸ˜ŽπŸ˜ŠπŸ˜‚πŸ’ƒπŸ•Ίbeen getting up close & personal with my new friend Charlie Pappa... my CPAP machine ..the mask and the way to control Charlie ... So best way snuggle up to a day time film together and get switched on ...lol and what better film to watch than an all absorbing French Canadian film .. all the time my activity being remotely monitored by my medical team so was not too naughty 😁😊

Its just a good way of getting to know my new friend in daylight and with some distraction to not focus too much on the mask .. after awhile we actually feel one ...fully merged 😊😁   Pengu my cat even settled to snuggle up with me ...
Been reading information sheet and QR code taken to Harefield team video of instructions..

So feelin me and Charlie Pappa gonna get on real fine now for night time switch on times 😍hhhhhh πŸ’—  


Wednesday, 25 September 2024

The new bedtime CPAP look


😊😁and so the new kinky sexy bedtime Top Gun Tom Cruise look hhhhhh 
There are establishments where the clientele would pay for such masking up πŸ˜ŽπŸ˜³πŸ˜‚


Find out more about Sleep apnoeas and Continuous Positive Airway Pressure CPAP .. its needed to keep out of major medical issues of hypertension and Stroke, Heart Failure, Death. There is research into sleep apnoeas leading to Alzheimer's...and depression... I certainly have been experiencing muscle fatigue and a tiredness that makes you feel like curling up and sleeping through the day .. lol Dormouse Syndrome... So I am looking forward to regaining energy ...improved mobility ... 
Thank you Harefield Hospital and thank you NHS ..πŸ’—
 



 

Harefield Appointment

 
πŸ₯πŸ’—got a call to go to Harefield Hospital as a spare Out patient slot today to pick up my CPAP machine for home management of sleep apnoeas. Was early so had time in the chapel ..the stainglass window amazing ..and spooky my year of birth 1954 how my life pathway led to being a nurse and midwife .. My Respiratory technician Alice was so kind with me and calmly explained set up of machine.. mask fitting ..and the start up gradual air pressure from 4 to 8 for night time sleep.. had time to practice and feel the positive pressure air ventilation.. But note this machine needs electric power .John McDonnell MP . So will I get Winter Fuel Allowance and a social tariff. Many patients need energy service help with home medical equipment, management that saves admission to the NHS beds! We are so lucky to have such a specialist hospital in our London Borough of Hillingdon... πŸ’— i loved how someone had left a bag of crotchet butterflies in the chapel as a gifted message to those that found this gift Harefield Sleep Apnoea information
Historical look at Harefield on the staircase to the chapel 
Needs electric power! 



 

 

Tuesday, 24 September 2024

Concern over Beck Theatre

πŸ•ΊπŸ’ƒ Good discussion today on the value of our local Beck Theatre Hayes. A great entertainment hub respected by many celebrities and artists. Audiences come from far and wide to performances. There is another value in that youth are trained in music, dance &  stage production. We have had local talent that have gone on to perform in the West End.  So there is alarm that we may lose our theatre in the future. Campaigning is under way.  πŸ’žπŸ•ΊπŸ’ƒ


 

A Day of Care & Networking for Aged

Today was a very busy day in the Pavillions Uxbridge showcasing support, charities, organisations and Brunel University  research into ageing. 
A lot of concern today at the Ageing fair in Pavillions Uxbridge.. yes some OAPs can cope but many fall short of Pension Credit criteria but still need help as savings dwindled.. .. we do need emergency APPG Poverty & Disability meeting with energy companies..need social tariff and energy companies crediting accounts of vulnerable... today touch me about blind and Alzheimer's surely out of human care compassion they should be helped... and patients managed at home with medical equipment that needs power. This policy should have had impact analysis and debate in parliament! I still draw attention to cold environment leads to poor muscle and joint performance so mobility worsens then falls risk falls risk # NOF thst needs NHS emergency admission for orthopaedic surgery and post op rehabilitation.. so transfers cost to NHS ... how then this balances books ????




 

Rainbow Children's Day Unit

Dropped off some more knitting to the Rainbow Children's Day Unit  at Hillingdon Hospital today.. in my dedication to Princess Zainah, my Palestinian MSF nurse's daughter in Gaza. I cannot get knitting to them like when I have for my Syrian refugee children  - so as my nurse has cared in oncology and has an article published in the European Journal of Oncology Nursing,  then I dedicate to his beautiful daughter. Zainah is 6 months now.. My nurse sends love to the staff and children here in my local hospital. A born nurse that cares for all. 

To day the receptionist told me is Children Cancer Awareness month I have found this link Children's Cancer Awareness Children are so brave with treatments ..so good we have kind caring skilful staff to help on the journey of healing. Plus support parents.  


πŸ’žLovely to see other keen knitters are donating too. πŸ’ž

There are community events too in support of families. 

Friday, 13 September 2024

Covent Garden & Meet Up

What a lovely afternoon yesterday in Covent Garden and a meet up with my peace activist Turkish friend, Ceren.  We met on the peace marches and have become strong friends since. My international projects and my activism links up with her activism and experience. So we are Sisters together in our aim for Peace and harmony in this world and stopping the madness we are seeing in the world.  
We had a good catch up time in the Royal Opera House coffee area.  Then Ceren was off to ballet.  I had thought she was booked for a ballet production but no she was off to ballet lessons. Not in the Opera House but at the Pineapple Studios apparently they do classes for over 40s and those that cannot get their leg up high anymore lol .. when I look at the website wowee there is so much going on there.. Maybe just maybe when I get my energy back from the CPAP treatment of my Sleep apnoes this 70 year old could do some dance too ... Silver Swan lol 

My journey to Covent Garden went well on the Elizabeth line from Hayes to Bond street then I took the 139 bus taking me to a stop close to Covent Garden on the Strand. The walk through Covent Garden was a pleasure looking at the wonderful gift ideas and talking with stall holders and traders. So here are some images to enjoy and in the hope to give some trade to them all.. Certainly if you are visiting London Covent Garden is a must experience from artwork, to scented candles to jewellery to wacky ties with also cafes, restaurants, street entertainers and of course the 
Royal Opera House  




I enjoyed Heidi and her artwork. We had a good talk together but my love of foxes led to unable to resist buying the F Fox artwork. Love it! when I think lovely idea for children to decorate their bedroom with Alphabet artwork.